When your child is diagnosed with autism spectrum disorder, there's a lot to learn. You're faced with new terms like "early intervention" and "positive behavior support." It's normal to feel overwhelmed.
But don't worry — you're not alone. Many parents have walked this path before. Many resources and support services are available to you.
Our 7-step checklist can help you find the best path forward. Learn about next steps for your baby, toddler, or preschooler.
Step 1: Learn About Your Child's Needs
Kids with autism might have language delays or trouble communicating with others. They may have unusual or repetitive behaviors, or troubles with learning. No two kids with autism are alike — and, as the parent, you're the expert on your child.
So, when talking to doctors or therapists, ask lots of questions. Tell them your concerns. If you're not happy with the answers, consider getting a second opinion.
Some kids with autism have other conditions like seizures, gastrointestinal problems, and trouble sleeping. If you have any health concerns, tell your doctor. Your child may need to see a specialist and have tests.
When you feel comfortable with your child's autism diagnosis, learn about treatment options that may include therapy and education services.
Step 2: Learn About Education Services
Birth to Age 3: Early Intervention
By federal law, kids younger than 3 who have special needs are entitled to extra support to help them reach developmental milestones, like talking. These services are called early intervention and offered through an individualized family service plan (IFSP).
In early intervention, children learn with the help of therapists at home, at daycare, or at another facility. Parents and caregivers learn how to help improve their child's language and communication. Some of the skills to work on include:
making eye contact
interacting in a back and forth manner
responding to others with gestures or language
paying attention to an object or event together (called joint or shared attention)
Children who do not qualify for an IEP may be able to get educational assistance through a 504 education plan, which provides support in a regular classroom to help with learning.
Step 3: Find Out About Health Coverage
Therapy to help with the symptoms of autism can help kids thrive, but not all are covered by insurance. Coverage depends on your state — and it's not always easy to figure out.
Here are ways to learn what is covered:
Call your health insurance company to find out what services they will pay for.
Talk to a social worker on your care team to learn about special programs available to your child.
Search online for tools that take the guesswork out of health coverage. Some national autism organizations provide helpful quizzes and other tools to learn what's covered in your state or health care plan.
If you don't have insurance, your state's CHIP (Children's Health Insurance Program) or Medicaid programs may offer coverage to your child. Medicaid also may be able to offer extra coverage if your health insurance doesn't cover all expenses. Coverage is based on your child's disability and need, not on your family's income.
Step 4: Find Childcare If You Need It
By law, childcare providers cannot discriminate against children with special needs. However, you do want to be sure that the daycare center or childcare provider you choose has the skills and setting necessary to safely accommodate your child. State agencies that handle early intervention usually can provide referrals to appropriate childcare providers.
Step 5: Join Social Groups or Schedule Playdates
As your child grows, find chances to socialize with peers and practice the skills learned in therapy. Parents of toddlers or preschoolers may consider joining a "Mommy and Me" class or schedule neighborhood play dates. These meet-ups can be a valuable learning opportunity for your child.
If possible, sign your child up for social skills training classes. These are specifically for kids who need extra help interacting with others. Kids learn about things like making eye contact, taking turns, and sharing. Most classes are led by a therapist or social worker, and might be covered by insurance or offered as part of IEP.
And don't forget about social opportunities for yourself or your other kids. Many areas have support groups for parents or siblings of kids with autism. Being around others who are going through similar challenges can help you learn new ways of coping.
Step 6: Get Support When You Need It
Life with a young child with autism can be overwhelming. So it's important to take breaks and ask for help when you need it. This may be hard to do at first, but it will allow you to devote more time and energy to your family.
So, ask a family member for help with things like laundry or meal planning. Trade off with your partner watching your child so that each of you can get much-needed "me time." Hire a sitter who feels comfortable caring for your child or consider respite care so that you can go out for a night.
Taking time for yourself can help you recharge. You'll come back to your child ready for fun, love, and all that parenthood has to offer.
Step 7: Secure Your Child's Future
If you haven't written a will or set up a legal and financial framework for your child's future, do so. Talk with an attorney who specializes in special needs law and a financial advisor to find the best way to manage your assets and prepare financially for your child's future.